WESTBOROUGH, MA May 15, 2017 Multiple Sclerosis is a demyelinating disorder that affects the brain and spinal cord of those so afflicted. MS is a disease that causes the immune system to attack the protective covering around the nerve fibers (Reference.com). Many of the nerves in the brain and spinal cord are covered with a myelin sheath – something like insulation on wire. This permits the instantaneous transmission of nerve impulses from one part of the body or brain to another. In patients suffering with MS their myelin is deficient sometimes having reduced efficiency or not working at all. It is a condition that for many gets better and gets worse. As you can see from this image taken from Google images the myelin sheath is the outer layer or membrane of fatty Schwann cells and other neuroglial support cells. MS may be linked to a virus and/or immunological compromise but its true etiology is not known.
We see a fair number of persons afflicted with M.S. in the rehabilitation hospital here in Massachusetts. MS is known to be relapsing and remitting in its quality which adds to treatment complexity and frustration for patients. They are a fiercely independent group of people and I can certainly understand why that might be. On some days they are able to get themselves out and into their cars for the drive to work something we might take for granted. While on other days, they may have difficulty putting on their their shoes and making lunch. Many are frustrated and angry that they cannot take care of themselves and sometimes wind up in our hospital getting physical therapy and other restorative therapies. Aquatic therapy is a great resource we offer at Whittier in Westborough, MA. I encourage people to become familiar with aquatic programs
in their area. They can provide support, pain management and effective physical therapy for those who may have limited energy resources. Fatigue becomes a problem in nearly all patients who suffer with multiple sclerosis. Cognitive changes are common in patients who experience long-term MS that sometimes make subtle changes in personality and all higher order problem solving, reasoning, and other executive functions. Some believe there are distinct personality features in those with MS
In addition to frustration and anger, some patients are resistant to restorative solutions suggested by rehabilitation team members who want to help. Some say “they want to do things their way” and resist rehabilitative suggestions that might offer energy conservation strategies or innovative methods for greater independence. Medication is used to reduce inflammation associated with MS and prevent relapse.
Reference.com. (2017) https://www.reference.com/health/treatments-multiple-sclerosis-2ed87c70dcd71896. Taken May 6, 2017
“Mike, the way to get followers is to be clearly understood”
Brian Gagan, Leadership Strategies of Phoenix Arizona
March 24, 2016 As a matter of practice I try and stay in touch with good friends as often as I can. I have some very good friends in this life. Some I have known for over 25 years. We travel together and try to meet two or three times a year. I am difficult to pin down on dates and arrival times, etc. I know this about myself. But occasionally I am vague and my friends become frustrated with me. Especially as our travel dates grow close. Once I had to cancel a planned visit 2 days before hand because of something I had forgotten about that I could not miss. My friend Brian and I have enjoyed a good friendship in spite of being quite different. Our skill sets often complement one another. But in some ways I’d like to be more like him.
Brian is a leader. Intelligent, concise, unwavering. I admire him very much. We worked together as police officers and later by contributing to the domestic violence literature by investigating a horrific case of domestic violence in northern Maine. His decisions are usually sound, forthcoming and without regret. In preparation for our upcoming trip Brian had asked that I confirm plans with him no later than Saturday. I forgot to do this. As a result Brian made alternative plans to meet with other friends who could be more concise and unwavering than I am able to be. The remarks above were made to me during my telephone apology for being late and missing the deadline. “The way to get followers is to be clearly understood.” He is correct as usual. I missed that message in the lead up to the Saturday deadline which I now regret. Clearly Brian had grown tired of my yammering. I wanted to meet him for a few days of R & R but was prototypically vague. By the time my plan crystallized Brian had moved on to other friends and activities – in the lead. My bad. I will miss seeing him next month in Maine along with other friends. But I will be ready for our next visit and I will endeavor to be clearly understood in my communication with him. Perhaps he will follow me next time.
The way to get followers is to be clearly understood. I get it. Thank-you for that lesson in leadership. You are a good friend.
WESTBOROUGH, MA March 28, 2016 Whenever surgery is recommended there are inherent risks that should be understood. The fast answer is “yes, there are risks when you replace someone’s aortic valve.” But not so fast.
Cardiac surgery has become almost commonplace in the current medical society. Here in the Boston area there are several heart centers providing surgical treatments and risks have been greatly reduced in the past 25 years. Procedures are now minimally invasive and require much less recovery time than the former procedures. Many centers are also using robotic assistance in valve replacement. There are at least 3 major centers in Boston with excellent surgical teams. Your physician will discuss these with you but the patient must understand the risk versus reward conundrum. You can read the list below for a bullet point visual. This is the case whenever one embarks on treatment – “what are the risks of taking one drug over another?” or “is there a risk when I undergo surgery to replace a stenotic heart valve?
One’s heart valves are meant to last a lifetime. The heart valves are paper thin and amazingly flexible and strong. The majority of people are born with the valves they will have at the end of life – 5-6 billion beats later. Arguably the greater risk associated with valve replacement surgery may be linked to the pre-surgical health of the recipient of the valve. It is common that patients have multiple comorbid medical conditions such a diabetes, poor cardiac health, hypertension, and obesity. The outcomes become only slightly murky with the host of illnesses I just cite.
My role in the cardiac rehabilitation is to assess cognitive functions when necessary. This includes concentration, attention, S-T memory, problem solving, and higher order thinking skill. It is not uncommon for patients to have altered mental status following surgery. Sometimes this is simply the result of pain cocktail and anesthesia but other conditions can contribute to changes in one’s cognition as well. Sometimes I am asked to provide support and counseling for those few patients who exhibit affective changes or frank signs of depression. On occasion behavior therapy is needed to redirect idiosyncratic motor restlessness or agitation. In general the goal of cardiac rehabilitation is to enhance functional capacity in the areas of endurance, physical fitness and activities of daily living to regain their independence. Full recovery requires a change in habits and lifestyle. This takes time.
The rehabilitation process is a continuum of care provided to those recovering from surgery who may be ready for the changes that will take them forward. This includes physical exercise and the nutritional support needed to enhance patient outcome.
The vast majority of patients who undergo valve replacement surgery sail right through it and never come to hospital acute rehabilitation. Most are referred to outpatient rehabilitation where they stay at home and attend rehabilitation during the day. For those who are sent for inpatient rehabilitation they wrestle with fatigue as much as anything. Many were in poor physical shape prior to surgery because of the insidious impact of declining cardiac health in the months or years prior to the procedure. Post surgical depression is common in as many at 25-40 % of cases. Psychotherapy and coaching can assist in the management of feelings that are sometimes present during recovery. I have heard “why am I doing this…” just as much as: “I can do this and have a second chance for health…”.
Risks of valve replacement
- Blood clots
- Cardiac arrhythmia – atrial fibrillation
- Excess bleeding
- Transient ischemia or stroke
- Kidney failure
- Death – 1-2 %
NHS – UK website – taken 3-10-2016
The Cleveland Clinic has a wonderful video that is attached.
WESTBOROUGH, MA March 15, 2016 In a published article headlining the BBC web pages the NFL has acknowledged that a link exists between repeated concussion and chronic traumatic encephalopathy – a deadly brain disease resulting in depression, memory loss, and erratic behavior. Only 50 days ago the NFL’s hired “expert” Mitch Berger, M.D., a neurosurgeon claimed that no link had been established between hits in football and the chronic brain disease leading to death.
This is the first time the NFL has acknowledged that such a link exists. Why are they now acknowledging what science has accepted years ago?
In Boston, neuropathologist Dr. Ann McKee unequivocally states that a correlation between concussive and subconcussive blows to the head has resulted in CTE in 90 of 94 brains she has examined – all from NFL players who have died and donated their brains to the Boston University Brain Bank. “The Boston Globe features this story as well today” according to Michael Sefton, Ph.D. “I have heard Dr. McKee and her colleagues report these findings since they examined the first series of brains including the brain of former N.E. Patriot Junior Seau who committed suicide shortly after his retirement from football.” The link has been well established for over 5 years but denied by NFL medical experts and league president Roger Goodell. The NFL Player’s Association sued Goodell and the NFL for hiding the dangers associated with concussion in 2014. The major motion picture Concussion starring Will Smith as real life physician Bennet Omalu was overlooked for an Oscar nomination in 2015. Nevertheless, the movie brought many of the NFL’s secrets about concussion out for all to see.
This link will take the reader to the BBC report.
WESTBOROUGH, MA February 1, 2016 This clock was drawn by a 78-year old man who was referred for outpatient neuropsychological assessment to determine the extent of change in dementia from his initial testing 24 months earlier. You can learn quite a bit from the drawings of people thought to be suffering from dementia. In this case, the patient was friendly and compliant. He put forth a good effort and worked with diligence and earnest. The task is the same for all cases – “draw a clock, put all the numbers on it and set the hands for 11:10.”
This clock effectively demonstrated the decline in the gentleman’s neurocognition. It was poorly organized. There was some neglect of the left hemi-space. He had no self-monitoring or internal executive capacity to guide his construction. He seemed surprised when I pointed out his work. The numbers were not correctly placed. The slash marks were meant as minute marks and not number 11. However, there were repeated numerals and reversals. No hands were placed.
I learned about cognitive testing while an intern at Boston City Hospital – now B.U. Medical Center in the South End. I loved my time there. I wrote a blog about clocks and the utility of the clock drawing about a year ago called “All this from a Clock”. If interested in the clock drawing take a look at the link I posted.
WESTBOROUGH,MA January 7, 2016 Is the game time behavior of parents becoming a menace at some youth sports? According to the Wichita (Kansas) Eagle, “the goal of youth participation in sports is to promote lifelong physical activity and healthy competition, officials said, but too often adults approach their kids’ games with their own goals, such as fame, money, Olympic medals and college scholarships.” This story was published in September 2014 after the wife of a football coach fired her pistol into the air to ward off angry parents who had attacked her husband over the amount of time their children were played in a previous game. According to the Wichita Eagle the coaches wife was not the only gun carrying youth football fan that day. This case was referred to local police to sort out.
In recent years, the behavior of parents has taken on a higher level of scrutiny at childhood sports across the country. Parents are becoming just as fanatical toward players, coaches, and game officials sometimes resulting in physical assault – even homicide. As an ice hockey coach for nearly 10 years I was never surprised to be met at the locker room door by an angry father holding his notes from our last match. “Mike, why did my son only play 11 minutes last week?” inquired a loving dad who was not interested in what I was selling. I had parents who came to practice while under the influence of alcohol expecting to play along side the team as an assistant coach. I have heard foul mouthed ranting from some of the most mild mannered parents all in the heat of battle brought on by the excitement of bantam ice hockey.
“A parent’s greatest strength – their unwavering emotional support of their child and their willingness to make sacrifices for their child’s athletic advancement – is thus also their greatest weakness.” This quote is never more true than when you read the story of Patrick O’Sullivan.
As recently as December 2015, retired NHL player Patrick O’Sullivan contributed his heart wrenching story of abuse while a youth ice hockey player growing up in rural Canada (The Players Tribute). “My father used to beat the shit out of me. I don’t say that to be shocking, or to get your attention. I say that because it’s just a simple fact. He would throw punches.” O’Sullivan described physical beatings that left him nearly unconscious from a ritual of choking and punching. After nearly every game, he routinely endured physical and emotional torment while riding home alone with his abusive father. People were witnesses – his father held nothing back often starting the physical harangue in the parking lot. And for what? Finally at age 16, O’Sullivan had had enough and for once in his life stood up to a true bully – his father. Ultimately, Patrick was drafted into the NHL and played in over 300 games with several NHL clubs. In interviews after the publication of his story Patrick shared the desire to end parent abuse by encouraging witnesses to step forward and confront violent parents so that more children might not suffer. The road for him was a rocky one fraught with pain and embarrassment, and his father’s screed.
Mann, F. Plumlee, R. (2014) Passionate parents mean trouble for youth sports. Witchita Eagle, taken January 10, 2016. http://www.kansas.com/news/local/crime/article2101296.html#storylink=cpy
Murphy, S. (2008) How to be a successful youth sports parent. Blog post , taken January 11, 2016. http://www.momsteam.com/team-of-experts/shane-murphy-phd/youth-sports-parenting/how-to-be-a-successful-youth-sports-parent#ixzz3wz8hqRC7
O’Sullivan, P. (2015) Black and Blue. Webb site: The Players Tribute. Taken January 18, 2015. http://www.theplayerstribune.com/?s=o%27sullivan